Wednesday, September 16, 2009

Things are settling down again

First off I want to say that I am so greatful for all the people I have around me who love and support me and Isabel and our whole little family. I am begining to settle down a bit after that big day on Friday. There was such an information overload for me and then I had to decide how I felt about the results. Isabel started on her anti-seizure medication (called Trileptal) on Tuesday morning--we forgot on Monday night so I have an alarm set on my phone for every morning and evening so that we don't forget to give it to her. Thankfully Isabel loves taking medicine, so I don't have to fight her day and night to take it. It is a bit on the pricey side (and, oh my God, if we didn't have insurance!) so we are going to sign up for Children's Special Health Care. This will cover anything that isn't covered by our insurance now, if we are approved for it. It is for children with long standing conditions. Anyway, I am really feeling fine about the result. Marni reminded me that Joshua had many EEGs and nothing ever showed up on his results. So we both found this hopeful that the MRI will clear her of the brain cancer. That is the most worrisome thing for me. Epilepsy I can deal with, brain cancer, I just don't think so. Everyone keeps asking me how I am dealing with this and to be honest I really am fine. At least for now. We will know soon when the MRI is. Our insurance is weird so it is all a bit confusing for me and gets lost in translation a lot so I am going to call the doc's tomorrow to find out what is going on with that again. I will update as soon as I know the date for the MRI.

1 comment:

  1. Glad you are soldiering through Liz, I know this is very chaotic and worrisome for you all. You are doing an awesome job at handling the whole situation. Which is the best thing you can do!! Stay strong, if you need ANYTHING at all please, please do not hesitate to call or email me k. We luv you!!!
    Big,Big Hugs
    -Sarah

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